Being Autistic means one thing to the DSM, another to the doctor, another to the school, and several things to the government. Every definition is written into your child's record. The one written by the Autistic person never is.
Medical Data Series
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Posts tagged with Medical Data Series
You can change your child's password, school, and email address. You can't change their genome. Between the newborn heel prick, prenatal screening, and the gifted ancestry kit, most of it gets collected before they can speak, and the law leaves a gap that lasts decades.
Amazon owns primary care, a pharmacy, and an AI health assistant — all folded into Prime, all one login. HIPAA is the firewall they promise will hold. Here's why the walls are thinner than the warranty suggests, and what parents should weigh.
HIPAA was written in 1996 — before smartphones, fitness trackers, and health apps. It doesn't cover what you think it covers, your medical records can't be deleted, and hundreds of millions of Americans have already had theirs stolen.
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